Festive Dress Up Day
Sunday, 31 December 2023, 00:00
Choose any day from 1st to 31st December to get your festive gear on and raise vital funds and awareness for Action Duchenne.
Grab your christmas jumper, santa hat, elf ears, rudolf antlers, angel wings, bobble hats, socks...anything goes!
If you are hosting your day in a school or office why not do a bake sale alongside? Or if you are hosting your day at home why not serve up some warming mugs of hot chocolate or mulled wine?
All you need to do is register, so that we know you are hosting a Festive Dress Up Day and can be in touch to support you and say thank you!
Registration is FREE, having fun in your festive attire....priceless!
registrations are not available
The event is closed.
Duchenne muscular dystrophy is a rare genetic condition caused by mutations in the dystrophin gene, which prevents production of a vital muscle protein called dystrophin. The lack of dystrophin makes muscles more susceptible to damage and leads to muscle wasting over time. Duchenne is usually diagnosed around the age of 4, and people living with the condition experience progressive muscle weakness. They typically need to use a powered wheelchair from their early teens, and since the heart and breathing muscles are affected most will require a ventilator in their twenties. Life expectancy is around 30 years. There is no cure.
However, with better technology, awareness and improvement in the standard of care we are seeing people with Duchenne living for longer and more fulfilled lives.
Action Duchenne is the longest serving Duchenne-only charity in the United Kingdom, providing a vital support mechanism for young people, adults and their families at every stage of their Duchenne journey.